We have rare genes, but a strong foundation built on real love and resilient hope.
—
MyhusbandJohnnyandIanxiouslysatacrossfromhiscardiologistawaitingtheannualupdateabouthisoverallhearthealth.
WewereespeciallycuriousabouttheechocardiogramresultswhichwouldrevealhowwellJohnny’sthen-19-year-oldprostheticheartvalvewasfunctioning.
Thankfully,hisvalvewasingoodworkingorder.Wesighedwithrelieftoreceivethereassuringreport.Butanelephantremainedintheroom.
Dr.McMullan,whoisalwayskindlyinquisitiveaboutourlifeandfamily,confrontedtheelephant.Hegentlyinquired:“Doyoutwoplantohavechildren?”
“Yes,”webothhesitantly,yetheartilyreplied.Weallexchangedsmiles.
Thenheresponded:“Okay,thegeneisautosomaldominant,whichmeanseachtimeyouconceive,therewillbea50percentchanceyourchildcouldhaveMarfansyndrome.”
KeNoshaWhiteheadwithherhusbandJohnnyandtheirtwochildren,SkyandAuggie.
KeNoshaWhiteheadwithherhusbandJohnnyandtheirtwochildren,SkyandAuggie.
CandiceHarrisPhotography
Wewerespeechless.Mar
